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As you may know; my T has an incurable life shortening illness and in fact,if the current survival statistics are to be believed, she's been living on borrowed time for the past 5 years or so, meaning I should never have actually met her.

I found out about her illness by researching her, although since I told her I knew she's been happy to talk about it if I ask. At the start of my therapy, her illness worried me hugely and if there was no activity on her blogs or websites for a day or two I'd convince myself that she'd taken herself into hospital, or worse, and work myself into a state over it.

Recently I've been thinking how I cope today. I still ask her every session how she's been feeling so it's obviously still on my mind; and I'm also very accepting if she cancels sessions at very short notice if her health deteriorates suddenly; but it's not the huge worry it once was. Have I learned to accept that she is very good at controlling the illness, and that she has a fantastic team of specialist doctors here in London to call on?

I do find myself going onto the website of the organisation carrying out the gene therapy research about once a month, in the forlorn hope of reading that the trials have been a success and that the miracle cure drugs will be available to T in time to help her. Alas that hasn't happened as yet Frowner

I was wondering; is this a healthy way of coping or am I avoiding the issue to some degree? How do others cope if you have friends or family or someone else you love and care about deeply in a similar situation; not necessarily your T of course? I'd be interested to know what others think.

Btw; T is taking a fairly long break from client facing work at the moment on the insistence of her doctors and her supervisor as she's burnt herself out both physically and mentally, although she is still allowing me sessions albeit at a reduced frequency, and I feel I 'owe' her that break somehow and want to try my best to cope with the reduced sessions. Is this healthy or distorted thinking?
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AV, your blog just nudged my memory bank of the reality I might have to face with the loss of my T. At the age of 83 yrs old he is not getting any younger. I have conveniently chosen not to mention, and push him for an alternative shrink, because I dont bloodywell want one, thank you very much!

I know an alternative one must be looked at for both our sake's. Meantime, I deny what might happen and continue on as per usual, in hope's that nothing will change.

OK, NOW I will push for an alternative next time we speak.
((((Muff)))) I do hope my post didn't trigger you in any negative way; I'm so sorry if it did. I hope I haven't inadvertantly dragged you out of your coping strategy by mentioning mine Frowner

((((Draggers)))) Thank you so much for your reply; you are kindness personified Hug two You're right; T IS a tough cookie and maybe there's comfort in the fact that her own mother survived the illness far longer than would have been expected.Again you're right about her just wanting to get on with life; she controls her illness rather than let it control her! I don't think T knows the meaning of the phrase 'self pity' Big Grin

quote:
they just want to get on and live life to the best of their ability


That's the hard bit, Draggers. T likes to live life over and above her ability at times; but you try to tell her to slow down!! Smiler Thank you for your lovely kind words. xx
AV
Your post reminds me of my niece who has an extremely rare autoimmune disease. There are close to 500 known cases now & she is still the second oldest to survive it. She's 18.
Because we don't know everything about the disease we don't talk too much about it as a family. We always ask about her health & cringe if she has a cold which could send her into the hospital. We just don't know what to expect, but I think we all realize that any time we get w/her is special.
You say your T is living on borrowed time. What an extraordinary thought, it gives me chills. Yet you get to work w/her! Every session w/her, I'm sure is a gift & it sounds like you've wrapped your head around the situation very well. Youre being honest w/your feelings & doing your best to cope. That is all you can ask for.
I think you both have a very healthy, honest relationship built around T & trust. Sounds very healthy to meSmiler
Muddd
((((Mudd)))) thank you for your kind reply. I'm really sorry to hear of your niece; 18 is just SO young to be the second oldest survivor Frowner

As for T; the current average survival age in Europe is 37; T is now 42 (and 5 months!) but her mother lived to about 50 I believe. She wants more than anything else to see her young teenage son, who didn't inherit the illness thank goodness, grow into a man; so maybe her wish will come true.

You're so right; every session, every moment, is a precious gift; and I'll take those feelings of gratitude with me to my grave. I guess the fact that T and I do talk openly about my feelings regarding her illness does point to a healthy relationship and it helps me to cope in the best way I can.

AV

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